Patients have to decide to have the surgery quite a bit before

If an ALS patient waits too long in the disease process to have a PEG inserted, there is a high risk that anesthetics for surgery will result in permanent mechanical ventilation. Patients have to decide to have the surgery quite a bit before they actually need to rely on PEG for all of their nutrition and hydration. ALS patients know they can choose to have the PEG inserted before it is needed but they do not have to use it until they decide to, or they can have it removed if they change their minds.

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